Well it's about time!

I have been wanting to start this blog but been way overwhelmed since the 9th.

This blog is dedicated to updating friends, family and anyone interested in Johnathan and our fight to save him.

On March 9th 2010 (weeks before his 4th birthday) Johnathan was diagnosed with Niemann-Pick type C.
His family and our community have taken on this battle to save our beautiful little boy and this will most likely be his story....