Yay!!! No more tests... for now.
Johnathan did really well with all his tests. We haven't gotten back all the results but they look good from the ones we have seen. The Doctors said they normally get kids in after they are showing a lot more signs so hopefully his participation in the study will be of great use.
The only neurological sign they could find had to do with his hearing. It's not damage but how the brain processes hearing. Progressive hearing loss also happen with NPC. This disease is horrible!!! What doesn't it steal from these babies?!?!? Really???
But on to better news... They are coming home tomorrow! I am so happy!! I have missed my baby! and he misses his bro-bros and sissy LOL!
No comments:
Post a Comment